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Eur J Cardiothorac Surg 2005;27:937-944
© 2005 Elsevier Science NL

EACTS Invited Guest Lecture

Surgical outcomes in congenital heart disease: expectations and realities

Hospital for Sick Children and The Toronto General Hospital, University of Toronto, No. 1525, 555 University Avenue, Toronto, Ont., Canada M5G 1X8

Received 8 December 2004; received in revised form 8 February 2005; accepted 11 February 2005.

^* Tel.: +1 416 597 0715; fax: +1 416 813 7984. (E-mail: bill.williams{at}sickkids.ca).

Abstract

The past 50 years of congenital heart surgery has produced enormous progress. Current results surpass expectations. Yet there are important residual problems in patients growing up after heart surgery for congenital heart disease. Our system of care must evolve to care for these people throughout their lives. The evolution of congenital heart surgery has reached a point in time when we should extend care to patients in under serviced emerging countries. Development of local expertise will be required within those countries that are willing to commit resources to an organized program of caring for people with congenital heart disease. Database technology is an essential tool for ensuring and improving quality of care in every congenital heart centre. Both Registry and Academic databases have much to offer in improving care for future patients. Yet overzealous privacy laws threaten the knowledge base provided by computerized databases. We need to guide our legislators in ensuring that the valuable resource provided by database technology is not lost.

Key Words: Congenital heart disease • Database • Registry • Academic • Emerging countries adult congenital heart disease

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